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3 changes: 3 additions & 0 deletions .gitignore
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Expand Up @@ -8,3 +8,6 @@ spell_check_results.tsv
.RData
.httr-oauth
docker/git_token.txt
.Rproj.user/
docs/*
*.Rproj
6 changes: 0 additions & 6 deletions 01-data_types.Rmd
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Expand Up @@ -72,12 +72,6 @@ ottrpal::include_slide("https://docs.google.com/presentation/d/1ivDTcLjb2078O0Ge

When used in EHR research, both structured data and clinical notes are generally de-identified to protect patient privacy. Patient ID numbers might be replaced with new identifiers, with linkages maintained by institutional “honest brokers” [@Dhir2008] charged with providing clinical data for research purposes. In some cases, dates may be changed as well. Clinical notes are generally “de-identified” through specialized software designed to remove names, dates, locations, and other sensitive details. Researchers working with institutions to access clinical data should be sure to understand local data de-identification practices.


## How to acquire clinical data

### Secondary Sources


## Description of data

### File types
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162 changes: 162 additions & 0 deletions 01c-how_to_collect_data.Rmd

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19 changes: 19 additions & 0 deletions 01d-how_to_acquire_data.Rmd
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@@ -0,0 +1,19 @@
# How to Acquire Clinical Data

## Learning Objectives

## Electronic Health Records

## Medical Databases (?)

## Registries (?)

## Secondary Sources

## Retrospective Analyses

Does this belong in collecting data or acquiring data?

Retrospective analysis involves the examination of pre-existing clinical data to answer specific research questions, explore hypotheses, and identify patterns or trends. This method leverages historical data collected from medical records, administrative databases, registries, electronic health records (EHRs), or other sources of clinical information.

## Summary
170 changes: 16 additions & 154 deletions 02-data_uses.Rmd

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2 changes: 2 additions & 0 deletions _bookdown.yml
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Expand Up @@ -5,6 +5,8 @@ rmd_files: ["index.Rmd",
"00-intro.Rmd",
"01-data_types.Rmd",
"01b-specific_data_types.Rmd",
"01c-how_to_collect_data.Rmd",
"01d-how_to_acquire_data.Rmd",
"02-data_uses.Rmd",
"03-data_management.Rmd",
"04-appendixI.Rmd",
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31 changes: 15 additions & 16 deletions packages.bib
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Expand Up @@ -3,32 +3,32 @@ @Manual{R-base
author = {{R Core Team}},
organization = {R Foundation for Statistical Computing},
address = {Vienna, Austria},
year = {2020},
year = {2025},
url = {https://www.R-project.org/},
}

@Manual{R-bookdown,
title = {bookdown: Authoring Books and Technical Documents with R Markdown},
author = {Yihui Xie},
year = {2021},
note = {https://github.com/rstudio/bookdown,
https://pkgs.rstudio.com/bookdown/},
year = {2025},
note = {R package version 0.46},
url = {https://github.com/rstudio/bookdown},
}

@Manual{R-knitr,
title = {knitr: A General-Purpose Package for Dynamic Report Generation in R},
author = {Yihui Xie},
year = {2021},
note = {R package version 1.33},
year = {2025},
note = {R package version 1.51},
url = {https://yihui.org/knitr/},
}

@Manual{R-rmarkdown,
title = {rmarkdown: Dynamic Documents for R},
author = {JJ Allaire and Yihui Xie and Jonathan McPherson and Javier Luraschi and Kevin Ushey and Aron Atkins and Hadley Wickham and Joe Cheng and Winston Chang and Richard Iannone},
year = {2021},
note = {https://github.com/rstudio/rmarkdown,
https://pkgs.rstudio.com/rmarkdown/},
author = {JJ Allaire and Yihui Xie and Christophe Dervieux and Jonathan McPherson and Javier Luraschi and Kevin Ushey and Aron Atkins and Hadley Wickham and Joe Cheng and Winston Chang and Richard Iannone},
year = {2026},
note = {R package version 2.31},
url = {https://github.com/rstudio/rmarkdown},
}

@Book{bookdown2016,
Expand All @@ -37,7 +37,7 @@ @Book{bookdown2016
publisher = {Chapman and Hall/CRC},
address = {Boca Raton, Florida},
year = {2016},
note = {ISBN 978-1138700109},
isbn = {978-1138700109},
url = {https://bookdown.org/yihui/bookdown},
}

Expand All @@ -60,7 +60,6 @@ @InCollection{knitr2014
publisher = {Chapman and Hall/CRC},
year = {2014},
note = {ISBN 978-1466561595},
url = {http://www.crcpress.com/product/isbn/9781466561595},
}

@Book{rmarkdown2018,
Expand All @@ -69,8 +68,8 @@ @Book{rmarkdown2018
publisher = {Chapman and Hall/CRC},
address = {Boca Raton, Florida},
year = {2018},
note = {ISBN 9781138359338},
url = {https://bookdown.org/yihui/rmarkdown},
isbn = {9781138359338},
url = {https://yihui.org/rmarkdown/},
}

@Book{rmarkdown2020,
Expand All @@ -79,7 +78,7 @@ @Book{rmarkdown2020
publisher = {Chapman and Hall/CRC},
address = {Boca Raton, Florida},
year = {2020},
note = {ISBN 9780367563837},
url = {https://bookdown.org/yihui/rmarkdown-cookbook},
isbn = {9780367563837},
url = {https://yihui.org/rmarkdown-cookbook},
}

6 changes: 6 additions & 0 deletions resources/dictionary.txt
Original file line number Diff line number Diff line change
Expand Up @@ -16,6 +16,7 @@ colorectal
comorbidities
Comorbidities
CPT
CRF
CRFs
CUIs
customizations
Expand Down Expand Up @@ -48,9 +49,12 @@ McGrady
MEM
Modi
Multivariable
ncbi
NCI
NDC
nih
NIH's
nlm
NLP
OMOP
ontologies
Expand All @@ -60,6 +64,8 @@ Permanente
personalization
Ph
PHM
pmc
PMC
polypharmacy
pre
PROMs
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